Keller Williams Charity Auction to benefit Federal Way family, three others

Casen Buswell, 3, lives in pain every day with a condition that only 13 others in the world have.

Casen Buswell, 3, lives in pain every day with a condition that only 13 others in the world have.

Violet Spataro, 4, sees out of one eye and carries the genetic mutation for cancer in every cell of her body.

Sienna Braun, 7, is about to undergo a bone marrow transplant after her second leukemia diagnosis.

And Leslie Aubry, 35, suffers from brain damage and paralysis after a brain bleed that caused a stroke. She used to be a nurse.

Casen, Violet, Sienna and Aubry were chosen to be the recipients of Keller Williams Puget Sound’s fifth annual charity auction on Nov. 7.

The Federal Way-based office received 15 applications.

While last year the auction benefited McKenzie Harris, a quadriplegic girl’s family, to the tune of $56,000, this year, Tricia Ackerman with Keller Williams said their goal is to raise $100,000 to disperse among the four recipients.

Janette Braun, Sienna’s stepmother, said being chosen to receive funds from the auction was “amazing, a blessing” and it came right when her Federal Way family needed it.

Sienna was diagnosed with pre-B acute lymphoblastic leukemia on May 2, 2014. After fighting it for a year, her family was heartbroken to learn it had returned over the summer.

Sienna’s parents decided to take time off work to be by her side for her chemotherapy treatment before her upcoming bone marrow transplant and the 100 days after she’ll have to recover.

“We’ve officially maxed out our credit cards and are about $30,000 in debt,” Braun said. “Outgoing bills, the essentials are about $4,000 a month, not including food and gas. It’s frightening to see what we’re going to be coming into now.”

The Brauns have three other teenage children who depend on them. They often take shifts at Seattle Children’s Hospital to stay with Sienna but after her transplant, she’ll need as much support as she can get.

“The first 100 days are the most important after transplant,” Braun said. “If something goes wrong … it’s when she’s most susceptible to infections.”

And planning for Christmas wasn’t even a thought until they found out they were recipients for the charity.

“Basically we spoke to the kids and explained to them there wouldn’t be a Christmas this year,” she said. “They were sad but totally understood. We have to prioritize funds but if this fundraiser from Keller Williams goes well, we may be able to at least have a small Christmas.”

Ultimately, the Brauns said the best gift will be having Sienna cancer-free.

Casen’s family has also paid thousands of dollars towards their child’s health — $150,000 in nearly four years.

“It’s an intense, scary thing to think about but we just try to take each day, day by day,” said Jenna Buswell.

The Buswells had to travel to Belgium when Casen was younger to meet the only doctor at the time who could help with his rare condition, Glomovenuous Malformation Plague Type. The genetic condition causes Casen’s vessels to grow irregularly, which causes painful lesions all over his muscles and chest.

It is so rare that at the time of his diagnoses, there were only 13 other known cases in the world.

After Belgium, the Puyallup family was told to go to San Francisco but the doctor wouldn’t help them. Luckily, they found a doctor in San Antonio, Texas through social media, who agreed to treat him.

So far, he’s had nine treatments, which include cauterizing the vessels with lasers. However, the treatments were so painful, he had a pain-induced seizure in January, so the family temporarily stopped them under doctor’s orders. Unfortunately, they have to start them up again if Casen will be ready for surgery when he turns 5-years-old.

Buswell said when Casen was born, there was a lot of community outreach and the family received financial support but their insurance won’t cover experimental treatment, which made costs out of control.

But still, through all of the pain, Buswell said her little boy appears to be happy and healthy as long as he’s clothed.

“As a mom, all I want is for my baby to have a pain-free and happy life,” she said.

Having been diagnosed with Retinoblastoma, a pediatric cancer in the eye, Violet’s parents knew their daughter would have future struggles. But the diagnosis was made worse when doctors told them she has a genetic mutation that leaves her highly susceptible to other cancers. Her body cannot produce a tumor suppression protein that most people have and her risk of getting another type of cancer before the age of 6 is high.

“That mutation is in every cell of her body,” said her mom, Shenay Spataro of Gig Harbor.

Treating Violet’s eye cancer included cat scans, 12 rounds of chemotherapy, MRIs, surgeries, a port-a-cath, blood draws, injections and more than 20 exams under anesthesia. In the end, doctors were able to save her right eye as well as her outgoing personality.

But that, too, came at a cost.

“Going through all of this for four years has honestly ruined us, financially,” Spataro said. “It seems like this hole that we’re never going to get out of.”

Spataro said people often think that when a child’s in remission, families don’t need help anymore but “that’s just not true.”

“When we found out we were a recipient of this Keller Williams auction, my husband and I just cried,” she said, adding their prayer had been answered.

The Spataros have had to sell one of their cars and are over $50,000 in debt. The money, they said, would go toward a commuter car to drive Violet to the hospital while dad is at work.

The portion Aubry, the former nurse, receives will go toward her care at a long-term care facility, where she undergoes at least three hours of therapy daily, physical therapy for her paralyzed arm and leg and speech therapy.

“She has the memory and mind capability of a 5-year-old,” Aubry’s sister-in-law wrote.

It may take up to two years for whatever recovery Aubry might have. She’s currently out of sick time, pay and vacation hours and received her last paycheck July 13.

She is single and lives in a two-story house with bills that are approximately $1,800 a month before medical expenses.

Ackerman said there will be a committee to determine how much funds each recipient receives after the charity auction. She expects the families to get those funds in time for the holidays.

The Keller Williams Charity Auction will be held from 5-10 p.m. on Nov. 7 at Emerald Downs in Auburn. A silent auction will run from 5-7 p.m. with drinks available. The dinner and live auction will take place upstairs and last from 7-9 p.m. Tickets are $75 and are tax-deductible.

To purchase a ticket, contact Debbie McNeil with Keller Williams at 253-835-4500. For more information about the event, contact Tricia Ackerman at 253-335-8729.